10 Popular MS Blogs to Check Out in 2023
On the lookout for new reading material this year? Here are 10 informative, relatable, and empowering MS blogs to help make life with multiple sclerosis a little easier.
Is it possible to keep a positive attitude when you’re constantly fatigued? How about if you occasionally wet the bed?
With multiple sclerosis (MS), symptoms can range from numbness and tingling to vision problems, bladder dysfunction, balance problems, dizziness, and more, according to the National Multiple Sclerosis Society (NMSS). But there’s no pattern of symptoms that applies to everyone; MS affects each person differently.
One thing everyone with MS can relate to, though, is the unpredictability of a condition that can have you feeling fine one day and lying flat on your back the next.
What Can People With MS Teach Us?
Figuring out how best to live with this incurable disease and the challenges it throws in your path can be overwhelming if you try to do it alone. So why not turn to other people with MS who know exactly what you’re going through? You can find a lot of them on the internet, blogging, creating podcasts, and sometimes posting a video or two.
In our favorite MS blogs, you’ll find plenty of inspiration, brutal honesty, new experiences, frustrations, successes, highs, and lows.
Regardless of where they come from and what they do, all these bloggers provide advice, encouragement, and a no-frills look at what life is really like when you’re living with MS.
1. Tripping on Air
2. Dinosaurs, Donkeys, and MS
Heather has made her story one of perseverance and positivity. She and her crochet donkey companion, Dizzy — named after one of her symptoms — chronicle daily life with MS via her blog posts and the occasional podcast, Dizzycast. Heather’s charming blog highlights her adventures with Dizzy (such as volunteering at a wildlife hospital or practicing donkey yoga) as well her tips for making life with MS easier and keeping your brain healthy. Don’t miss her helpful and reassuring articles on how to cope with an MS diagnosis and how to make MS injections less scary.
3. An Empowered Spirit
4. Ireland, Multiple Sclerosis & Me
Referring to her symptoms as her “MS-sponsored pajama party,” Willeke Van Eeckhoutte often takes a jovial approach in her blog, Ireland, Multiple Sclerosis & Me. Once, when retrieving the results of an MRI scan, she was asked to present a photo ID, to which she wittily responded, “Isn’t an MRI, like, a picture of my brain, photo ID?” But she’s not afraid to take a more serious tone when necessary, such as this open letter to the media that laments sensationalist headlines promising a cure for MS. Still, her posts consistently end on a happy note.
5. It’s a S--- Business
The title of this blog offers a clue to the tone of Steve Woodward’s long-running series of thoughts on his experiences living with MS. Frank, irreverent, and conversational, It’s a S--- Business is an unfiltered look at Steve’s day-to-day life, from what he calls “MS medications roulette” to the very real phenomenon of wheelchair envy. (Upon discovering the price of one particularly flashy model, he warns readers not to be surprised if he “reinvent[s himself] as an Instagram or YouTube influencer in the forthcoming months.”) He’s also not afraid to tackle some of the more serious issues facing people living with MS: Check out his posts on feeling “like a (literal) burden” when his family members had to push his wheelchair or “that’s not MY MS...”, in which he muses on a tendency among members of the MS community to “live entirely through the filter of their illness.”
6. My New Normals
Despite the challenges she has faced with MS, including learning to love the body that has let her down, Nicole Lemelle is an upbeat writer who hopes to educate, reassure, and inspire her readers in all things MS. Those who come to My New Normals appreciate her candor and positive attitude, especially when things aren’t going as planned. Like when, for instance, you get so desperate, you start believing in spam emails or you’re late for appointments because you’re running on “MS time.” Her posts touch on the very fibers of how MS can really change you, and she clearly hits a nerve in her readers; one of her most popular posts, titled “I Hate,” has garnered more than 200 comments. While her symptoms mean her blog isn’t updated as frequently as it once was, her website is still host to dozens and dozens of previous posts, and you can keep up with her on Twitter and Instagram.
7. Yvonne deSousa.com
8. Think in Decimals
Edith Solenne Monk was diagnosed with MS at 16. “As much as I hate that being my opening line,” she says, “it’s become a big part of my life.” It’s also a big part of her blog, Think in Decimals, which she’s been writing since 2015. She’s an avid traveler and has written about trips to Canada, Transylvania, and the Alps, among others. (Her favorite part of New York City? The “ lovely, accessible, concrete" pavements for wheelchair users.) She also does a lot of campaigning to draw awareness to the struggles faced by people living with a disability, whether it’s workplace discrimination or issues with the social care system. Eloquent and inspiring, Edith’s blog is a must.
9. Accessible Rach
10. Tripping Through Treacle
Jen is a 40-something single mom of a teen and a tween who has secondary-progressive multiple sclerosis (she was first diagnosed with MS at age 15). On her blog, Tripping Through Treacle, she writes about how to keep striving toward your health goals, life with progressive MS, the positive aspects of MS, and parenting and lifestyle topics. You can also find her on Instagram.
Additional reporting by Laura McArdle and Christina Vogt.