Where women with endometriosis, professionals, and caregivers get and give advice.
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Do your research in regards to medication side effects. Don't rely only on doctors for this information.
Kristina
Living with Endometriosis Age: 33 1 to 5 years
2
Pelvic floor physical therapy can help manage your symptoms. It can also help with post-operative recovery if you've had surgery for endometriosis.
Rachel Gelman, PT, DPT Healthcare provider for Endometriosis
0
QUESTION OF THE DAY:
What’s your best tip for managing endo?
Painkillers, tea, lots of rest, and taking it easy! Stress is a huge factor with my endo pain, so I try to take it as easy as possible. I try to drink as little alco ... read more
Christine
Living with Endometriosis Age: 19 Female 1 to 5 years
3
Seek out an excision specialist. Some gynecologists are misinformed about treatment options. Thousands of women are pain free after surgery with a specialist for end ... read more
Lauren
Living with Endometriosis Age: 35 Female More than 5 years
4
It's important to know that many women suffer from endometriosis. Many have it and don't know they do so this is why it's necessary to listen to your body and see yo ... read more
Dr. Janette Nesheiwat Healthcare provider for Endometriosis Age: 37
1
How to Get Heat Therapy On-the-Go
How to Get Heat Therapy On-the-Go
Up Next
Is Your Doctor Qualified for the Job?
When to Get a Second Opinion
The misery from endo wreaked my younger years. Finally, a wonderful doctor suggested uterine ablation...I wish I had had that opportunity at 20 years old! Now, I wou ... read more
Living with Endometriosis Female
0
Heat pads and marijuana
Ju
Living with Endometriosis Age: 24 Female More than 5 years
7
Poll
What’s your top strategy for managing endo pain?
Don't waste your time and energy with someone who is not informed about endo. If you don't know what excision or proper treatment is, join a Facebook group like Endo ... read more
B
Living with Endometriosis Female More than 5 years
3
Carry a heating pad with you everywhere!
Anusha
Living with Endometriosis Age: 35 More than 5 years
2
When the pain is getting too much for me, I'll find something (usually a pencil, ruler, or butter knife) and press it into the palm of my hand. It provides a momenta ... read more
Andi
Living with Endometriosis Age: 18 Non-binary / 3rd
2
Just do your research and don’t let anyone (especially doctors) make you feel like you don’t know your body. Ask questions and find someone that will answer all of t ... read more
Nichole
Living with Endometriosis Age: 39 Female 1 to 5 years
8
Find a therapist who understands chronic pain. Take time to grieve/get angry/feel however you would like in a space where processing and healing can happen.
Kelsey
Living with Endometriosis Age: 27 More than 5 years
1
Listen to your body and intuition. Be a self-advocate and understand doctors are people, too, and don't have all answers. I had numerous doctors tell me I didn't hav ... read more
Jolene
Living with Endometriosis Age: 34 More than 5 years
1
Find a pain specialist.
Living with Endometriosis Age: 21 Female More than 5 years
2
Look at your diet. I cut out dairy, sugar, and gluten after my excision surgery. I can't put into words how much those changes have helped. I believe those foods con ... read more
Emily
Living with Endometriosis Age: 26
2
Surrounding myself with people who understand, or at least sympathize, with what I go through is helpful. If there is a person in your life that does not care to und ... read more
Kenzie23
Living with Endometriosis Age: 21 1 to 5 years
6
Fast Fact
1 in 10 women has endometriosis, making it almost as common as diabetes.
Endometriosis UK
1 in 10 women has endometriosis, making it almost as common as diabetes.Whether you need it or not, take some alone time! You may feel the need to explain to others why your mood is variable and you can't seem to get comfortable, etc. Th ... read more
Brittany Ferri, MS, OTR/L, CLT
Living with Endometriosis Age: 27 Female More than 5 years
3
Endometrial implants wax and wane with your periods. If you turn off the periods, you turn off the growing and sloughing of the endometrium. Working with your doctor ... read more
Sophia Yen MD, Healthcare provider for Endometriosis Age: 46
1
Keep a diary and get specialized help based on your symptoms. Period pain that interferes with life is not normal. Don't risk your fertility by delaying diagnosis an ... read more
Judy
Living with Endometriosis Age: 58 More than 5 years
4